Real Life Guides – Living with uncertainty after a cancer diagnosis

We are working on a series of guides that will cover some of the key issues faced by younger adults living with cancer.
As you will know, a lot of these issues do not have one ‘right answer’ so we would love to use your insights, experiences and ideas to make sure they really reflect reality.
Covering topics such as returning to work after a cancer diagnosis, living with uncertainty and dating after a cancer diagnosis, we know that there is a real need for people to be able to access information as well as different views and experiences to help them live the best life they can.
It would be great if you could spare a few minutes to add your thoughts and experiences into each topic as we write the guides.
You can either email Emma for a full list of topics and then email her again in confidence or you can share your comments directly on this blog…
This month’s topic is ‘living with uncertainty’ and we have got you started with comments from our recent workshop.

Please help us make these guides a really honest and helpful piece of work.

Thank you!


Living With Uncertainty

In our survey of people diagnosed with cancer who are in their 20s, 30s and 40s 85% of people said that they had lost a sense of security in their future, 93% of people think that cancer will always be part of their lives.

Whilst we cannot remove the uncertainty that a cancer diagnosis brings, we hope that by sharing what others think we may be able to reduce the feelings of isolation that this uncertainty can bring with it.

We would love you to write in the comments below (or email what you think causes the feelings of uncertainty and how you have learned to deal with these (or what you have tried that hasn’t worked)

We will write up your comments into our new real life guide which will be published on our website and printed for distribution where we hope they can help others going through similar experiences.

There will be a new topic each month so please come back regularly to help with all of the guides!

To get you started – here is what people were saying at our recent workshop…. Do you agree? Or do you have a different opinion?

What are people uncertain about?

Will I cope and will my family cope?

Will I need more treatment?

How will I get through treatment? Fear of the unknown

Will I be able to go back to work?

Will by job still be there for me?

Can I plan anything? ever again?

Should I change my lifestyle?

Can I pay my mortgage?

Can I book a holiday? What about insurance?

And advice?

Plans can be made and plans can be changed!

Try and focus on what you do do and not what you can’t/haven’t done

Be kind to yourself

Guilt is a wasted emotion

Allow yourself to have a bad day occasionally!

So what do you think? and what do you suggest? Did these issues bother you and what did you try to combat them?

Thank you for your help!