In this post, Shine’s blog editor Caroline writes about her first time at Shine Connect, our annual conference for people in their 20s, 30s, and 40s living with and beyond cancer.
I discovered Shine Cancer Support when I was first diagnosed with cancer in early 2017. I felt completely lost and as I clawed around in the dark, trying to make sense of the incomprehensible, I found the Oxford Shine network. I started going to local meet-ups, and then I was lucky enough to get a place on Shine’s Bournemouth Great Escape. I’ve been to Shine Camp, I’ve completed a fundraising 50km hike, and I also volunteer as Shine’s blog manager. If I could bear to look when the cannula goes in, I might even be able to confirm that I bleed orange too – who knows?
I’d never made it to Shine Connect though. I have anxiety that sometimes makes it harder to spend time with large groups of people and besides, who wants to give up an entire spring Saturday to talk about cancer? As it turns out, approximately 150 other young people with cancer! As May rolled around, I decided that this year I was going to give Shine Connect a try.
I’d signed up to attend the pre-conference breakfast, so I had an early start to get into central London from my home in Oxford. I arrived at The King’s Fund to coffee, delicious pastries and a big Shiny welcome! Each attendee (including me) had been matched with a Shine volunteer, which meant that I immediately found myself chatting with a small group of people, including one who had travelled all the way from Scotland just to attend Connect!
The conference began with a short welcome from Shine founders and co-directors Ceinwen Giles and Emma Willis, during which they introduced the charity and re-launched Shine’s small c project.
Second on the main stage was a panel discussion with Shine members Charlotte, Precious, Dan, and Chris who chatted about their own experiences with cancer and, in Chris’s case, what it’s like to watch a loved one go through treatment. I find it really useful to hear other young people’s stories. Regardless of the type of cancer, there are plenty of commonalities. The panel discussion picked up on a lot of themes that were then explored in talks and workshops throughout the day.
There were lots of workshops to choose from but I’m really interested in improving my fitness to make sure I can live longer with my lung metastases, so I joined the session ‘Getting active after a cancer diagnosis’, led by Gemma Hillier-Moses from Move Against Cancer. Once Gemma had us all warmed up with a group attempt at the Cha-Cha Slide (so happy that there are no photos of me!), she talked about Move Against Cancer’s online programme for under 30s, as well as their popular 5k Your Way initiative. As someone who repeatedly sets herself challenging fitness goals but then gives up when she fails to achieve them, my biggest takeaway from the session was that movement doesn’t have to be structured. Going out just to run, rather than run 5km or run for 30 minutes, can relieve some of that ‘pressure to perform’ that we often experience. A brilliant tip!
Lunch provided the opportunity to share stories from the morning sessions, make the most of the delicious hot buffet (I’m still dreaming about the chocolate bread and butter pudding!), and meet the exhibitors in the marketplace. I snuggled the therapy dogs, picked up some lovely free moisturiser from Jennifer Young, and chatted to researchers about the specific needs of young adults with cancer. I also managed to catch up with some friends from the January 2018 Great Escape, which was great.
In the afternoon I opted for the ‘Managing Relationships’ workshop, led by Emma and Rosie from Shine. We talked about how the relationships with our family, friends, and colleagues have been affected by cancer, and the session felt quite emotional. Although I’ve taken part in similar discussions before, I still left the workshop with some fresh perspectives and new ideas.
After a quick cup of coffee (and scones and brownies!), all the conference delegates gathered for the keynote presentation: neuropsychologist Dr Stuart Anderson talking about the dreaded ‘chemo brain’! Dr Anderson put our cognitive skills to the test with a couple of simple but challenging exercises, then explained some of the scientific literature on the topic. I’ve never had chemotherapy but I’m sure that cancer has affected my brain cells – so it was good to hear that ‘chemo brain’ is also known as cancer-related cognitive impairment, and neurotoxicity from chemotherapy is only one of the many suggested causes. I can blame my poor memory and attention span on cancer after all! Thankfully, Dr Anderson closed his presentation with lots of helpful brain training app recommendations – so hopefully I’ll be able to concentrate again soon.
Emma and Ceinwen closed the conference by thanking the event organisers TTA, the speakers, and all the excellent marketplace exhibitors. After a final group photo, it was time to open the bar! I had a fantastic time at Shine Connect and the day flew by. I’ll be back next year – and I hope to see you there?