Bowel cancer at 32: Life, but not as you knew it

April is Bowel Cancer Awareness month, so in our latest blog post, we’re bringing you a blog by Cara, a Shine member who was diagnosed with bowel cancer shortly after she turned 32.  Currently undergoing treatment, Cara is passionate about raising awareness of bowel cancer and its symptoms, as well as sharing her experience of treatment. Please do share this blog with others and, as always, let us know what you think!


As April is bowel cancer awareness month I am asking this:

#Isitok that on average 2,500 young people in the UK are diagnosed with bowel cancer every year and that many of these individuals experience a delayed diagnosis? A delayed diagnosis that stems from a perception that in your 20s and 30s you’re too young to possibly have bowel cancer?

Cara 1

Guest blogger, Cara

I decided to write this blog post because that is exactly the situation I found myself in 14 months ago when I was diagnosed with stage 3 bowel cancer and I hope that by sharing my story I can raise awareness of the disease and make people stop and think. After all, nine out of 10 people survive bowel cancer if it is caught in the early stages and the key to this is early diagnosis. My advice is that if you have a concern and it’s not normal for you, don’t be embarrassed speak to your GP about it. We all know our own bodies and you know when something just isn’t quite right.

A little about me……

At 32 years old I found myself staring cancer in the face like an insurmountable challenge that I didn’t know if I was strong enough to tackle. It had taken 10 months to reach a diagnosis and when I speak to other people my age with bowel cancer I’m not alone in having been told we are just ‘too young to have cancer’.

My cancer story started when I decided to pay a visit to my GP because I was slightly concerned that there were some changes in my bowel habits and I was experiencing abdominal cramps. A routine blood test showed that I was anaemic and the GP made a referral. Looking back now the anaemia explained the tiredness I had been dismissing for months as something that just happens when you “turn 30” – something which now makes me chuckle as if reaching 30 puts you on some slippery slope to the realms of being an OAP!

Before I knew it, we were six months down the line with no answers as to why I was anaemic, and with the suggestion that the pain and anaemia were both down to period pain. During this time, I also had to deal with the death of my father. It was a difficult time, but as I dealt with my grief, my life began to get back to some sort of normal. I was going to the gym, going out with my friends and I even took part in a charity cycle from London to Paris with work.

However, as the weeks passed I found myself being unable to keep pace with my friends. Little did I know that my anaemia had slowly been getting worse and that lurking in my colon was a growing tumour. Just before Christmas, after a couple more visits and chats with the GP, I found out that my red blood count had fallen dangerously low and that my doctors were considering a blood transfusion. A test on a stool sample discovered blood that wasn’t visible to naked eye and I was quickly referred for a colonoscopy. That was when I knew I had cancer. I had seen this before when my father had been diagnosed. From that point my diagnosis happened very quickly but what I still couldn’t get my head around was why, with my family history of cancer, the faecal test wasn’t done at the beginning alongside everything else. It’s still something that I question today.

Since my diagnosis I have faced 14 months of endless hospital appointments, blood tests, seven hour days in the chemo unit, major surgery and blood clots, and while I would love to say I am at the stage of moving from cancer patient into the ‘life after cancer phase’, my post-chemotherapy scan showed lesions on my liver and the cycle has begun all over again. I am now undergoing a more aggressive chemotherapy which involves the joy of a ‘cold cap’ in a vain attempt to save my hair!

Another twist in my tale…..I have Lynch Syndrome…..

Lynch syndrome is the most common form of hereditary colon cancer and can increase the risk of developing colon cancer by up to 80%. Statistics make it as common as the BRCA mutation, but many people won’t have heard of it. Being in active treatment, I haven’t been able to fully address the impact that Lynch syndrome could have on my future, but I know that when the time comes it will have an impact on decisions about children and also that there will be decisions to make about having preventive procedures. While it would be very easy to think that knowledge of this mutation could have helped to detect my cancer earlier, I can’t change the past. I do believe though that knowledge is power and, that by ensuring I get right screening, I can minimise my risk of developing another cancer in the future.

What I have learned….

Dealing with a chronic disease forces you to develop a certain superhero strength…but that’s not to say that there aren’t difficult days or days where I feel so overwhelmed by it all that I don’t know how I going to make it through the next bit of treatment. Cancer will change me, but how is not yet fully clear. I’ve been told that I am so strong to be able to deal with everything that I am going through ………personally I don’t think I’m anything out of the ordinary. I think we all have superhero strength within all of us. It’s like the saying goes: ‘you don’t know how strong you can be until being strong is your only option’.

Cara works as a buyer in the womenswear department of a major UK retailer. She volunteers as a Cancer Research UK Campaigns Ambassador and claims to have an unhealthy addiction to travel literature and anything travel or adventure related! You can follower her on Twitter @Caraeliz24.

 

 

 

 

 

Breathe and bend! How yoga can help you cope with cancer

Every year, at Shine’s Great Escape, we run morning yoga sessions for our “Escapees”. For many, it’s the first time they’ve tried yoga and most people are pleasantly surprised by how much they get out of it.

In this blog, Stephanie Bartlett shares her experience of starting yoga during her cancer treatment and how it’s helped calm her busy mind.  Want to learn more? Below Stephanie’s blog, we’ve posted some ‘getting started’ tips from Shine’s yoga guru (and podcast host) Tatum de Roeck!


StephAndTheo

Stephanie with son Theo

Last July I was diagnosed with cancer.  As a young and healthy 32 year old, I certainly wasn’t expecting it, though I have learnt very quickly it genuinely doesn’t matter who you are or how ‘healthy’ you thought you were.

Cancer for me has been ‘mind consuming’. In the seven months since my diagnosis, my mind has been consumed with everything cancer related, from the seemingly endless weeks of waiting for test results to the side effects of 18 weeks of chemotherapy to the apprehension of the next course of treatment; there was just no getting away from it.

That was until I discovered yoga. My very first yoga session consisted of some simple breathing techniques and some basic stretching and relaxation. I followed my instructor and it was very peaceful. I found it easy and I soon realised that an hour had passed and I hadn’t thought about cancer.

I can only describe how I felt after my first session as a balloon floating in the sea. I felt present in the here and now.  My mind felt completely empty.  No thoughts had entered my mind the entire time. I had no idea what it felt like to be free of the constant cancer woes until then. I also felt very relaxed, like a weight had been lifted off my shoulders and like I was finally lightened of the burden.

I continued to practice yoga with my instructor about once a fortnight and before I knew it I had learned a whole yoga flow and every session we were adding to it. I was also learning more how good it was for my mind and body. Post-surgery and during chemotherapy I looked forward to each session as I viewed it as my escape from cancer. I then found myself doing yoga on my own at home in the days in between seeing my instructor – I could finally escape cancer every day. I knew exactly what to do and I loved it.

The truly great thing about yoga is that no matter how I was feeling or how physically able I was (and this changed from week to week, with the effects of surgery or chemotherapy), I was always able to do yoga. And it’s really not about getting one leg wrapped around your neck while balancing in the shape of an elegant swan – rather, it’s all about connecting with yourself and using your mind and body no matter how much you’re able to move.  Basically, we can all do it, no matter how flexible you are.

As a busy and working mum to my five-year-old son, Theo, I’m constantly on the go.  Life is always eventful and there’s no escaping the constant need to be somewhere or do something.  This consumed a lot of my thoughts before cancer and adding cancer to that mix made life even crazier. Yoga enabled me not only to calm down my mind but also to focus on simply moving and breathing.  It lets me forget the chaos that life has thrown at me and it enables me to put into perspective the important things that are worthy of my attention. Most importantly, it also helps me forget about the pointless little things that can fill the gaps.

I have certainly caught the yoga bug; I now know a moon flow, what sun salutation is and can do my warrior poses.  During each of these yoga flows, the actions and breathing are the only things on my mind. Even before the cancer diagnosis I didn’t know it was possible to escape; I’ve always had a busy mind so for me it’s been a real eye opener. Steph1

I cannot recommend yoga enough to anyone going through a cancer diagnosis or treatment – an even those that aren’t. I once thought “oh, yoga is not for me – it’s too airy fairy”.  How wrong I was!  I have even booked myself onto a four day yoga retreat in Spain, as a reward once all my treatment is over. It’ll involve hours of yoga, relaxation and a well needed break in the sun.I genuinely never believed yoga would help me as much as it does but I honestly love what yoga does for me.  Give it a go, you won’t know until you try it!

Stephanie lives with her son, Theo, who is five, and she was one of Shine’s 2017 Escapees. To learn more about the Great Escape, click here. And if you’re interested in trying yoga, read on for a briefing by our yoga instructor (and podcast host) Tatum de Roeck!


Thinking of trying yoga after cancer?

Three months after Tatum de Roeck qualified as a yoga teacher, she was diagnosed with breast cancer.  Below, she shares her tips for getting started with yoga. Tatum

Even knowing quite a bit about yoga, I was still daunted going into a new class when my body felt so alien. It was tough dealing with feeling physically limited, emotionally all over map and mentally frazzled. What made it easier was having an idea what to expect from a class and how to find the right one.

I now teach yoga as my main job and give classes as part of Shine’s Great Escape weekend. Many Escapees have never done yoga before and the class has given them the chance to find out they rather like it! So for others who think they might fancy giving yoga a whirl here are some tips and thoughts to help make finding the first class a little easier.

Yoga is yoga, right?

Not all yoga is the same. The spectrum of classes range from ones where all the poses involve lying down on the ground with cushions and blocks, to hot sweaty powerful classes that seem to be created for acrobats from Cirque du Soliel.

I’m not flexible, can I still do yoga?

Yes! Yoga isn’t about what it looks like on the outside but how it feels inside your body. You can be one millimetre into a pose and feel the benefit of the stretch. If you feel it, that’s your pose and it is perfect. Someone else might have a different rotation in their hip joint and their legs may impressively flop out, but they may be working on how to engage their muscles instead which might be just as much of a challenge. It’s good to bear in mind since everyone’s body is wildly different (and always changing) we don’t bend to yoga, it is yoga that should bend to us.

Starting Slow

Slow classes give you time to try a pose, see if it’s right for you and adjust as needed. Even if it’s a super relaxing class it gives you a chance to hear some yoga terminology, become familiar with teachers providing different options, and to build confidence for trying the next class.

How do I find a slow class?

If there is a yoga studio nearby I would either pop in or give them a call to ask if they offer a relaxing, slow or gentle classes. Some bigger studios sometimes even offer classes handily named something like ‘yoga for people with cancer’. Most mid-size studios will have great introductory offers of unlimited classes for a couple of weeks. This can be a really useful (and far cheaper) way to try out different classes. Sometimes yoga classes at the gym are unhelpfully labelled ‘yoga’. In these cases its useful to get some more info otherwise you might be in a sweaty power hour territory.

The key things to ask is it is suitable for beginners and is it gentle? If possible it may be good to see if you can briefly contact the teacher before you plan to take the class.

A lot of cancer centres like Maggie’s also offer yoga and if they don’t offer yoga on the premises it’s worth giving them a call to see if they know a place or a teacher they’d recommend.

What do I wear?

The main thing is to wear something comfortable, which doesn’t restrict movement but isn’t too loose. The reason we don’t wear baggy T-shirts is because some of the poses (like a forward fold or child’s pose) will cause loose T-shirts to ride up exposing the stomach and lower back or rising so much it covers your face. Very baggy shorts can also show a bit more than you bargained for. If this happens you spend the class fighting with your clothes which takes away a little of the joy (I’m relaying this from personal experience!).

Getting to the first class early

It’s a good idea to get to your first class 15 minutes early. There will be forms to fill out and it’s a good time to talk to the teacher before the class starts. You can let them know you are trying yoga for the first time, that you may need to take it easy or have a part of your body where there is a limitation of movement. They are the best people to give you a bit of an idea about what to expect in the class.

Do I need to do all the poses?

Nope! Yoga is about being in the body and feeling out what is right for you. Anything that causes sharp pinching pain or any sensation which takes your breath away is a sign from your body saying that position isn’t right for you at that time. If this happens you can come out of the pose slightly or fully. There is a pose called child’s pose which is the go to position any time in the practice. It’s the pose to regain your breath, to rest or simply stay there until another pose that you might like comes along.

Giving it another go

Since there is such a variety in yoga styles, teacher personalities and range of environments it is worth giving yoga more than one class to really determine whether or not it’s right for you. If you find it ultimately isn’t what you want at the moment that’s totally ok too! You’ll know what it is and that it’s there if you ever want to come back to it.

Ask for Recommendations

One of the best ways to find a class is to ask others who have tried and tested classes already.  In the comments below, feel free to share your experiences and any places or teachers you love. You never know another Shiny person may be in your ‘hood and looking for a class!

 

Meet Jonathan!

There aren’t many jobs where having had cancer works in your favour, but here at Shine it strangely does. Today, our first ever Programme & Administrative Assistant, Jonathan, starts working with us and we couldn’t be more excited! We were delighted when we met Jon and found that he had both the skills and enthusiasm we wanted – and also that his own experience of cancer meant that he totally gets what our work means.

Jonathan grew up in Bournville, Birmingham (with the scent of Cadbury chocolate in the air!) going to drama classes, singing, playing the piano and building a huge Lego collection. He studied acting at university and is now based in Poole. Jonathan will be helping to ensure that everyone has a great time at Shine’s national events and that as many people as possible know about Shine’s work via social media. We asked Jon to write his personal experience of cancer so that we could all get to know him.  Read on to learn more!


What were you diagnosed with, and when?

jonathan-smith

Shine’s new Programme & Administrative Assistant, Jonathan

I was diagnosed with a malignant brain tumour (pineal germinoma) in 2007 which had spread to my spine.

How did you find out that you had cancer?

Unquenchable thirst and un-ending trips to the ”porcelain throne” were my first strange symptoms in 2004. I was told constantly by my GP that I was a “healthy young man”. It was 2006, when my weight had dropped to below 7 stone and I’d begun to see double, that my GP finally referred me to eye hospital.

After identifying (and filming) a rare eye condition, the eye department sent me for a MRI scan which revealed a ”small benign lesion” pressing on my pituitary gland and optic nerve. A pituitary condition (diabetes insipidus) which was causing my water problems was also belatedly diagnosed.

On 27th March 2007, I woke up barely able to walk or speak, and emergency brain surgery finally revealed I had a malignant tumour.

What did you think and feel when you were diagnosed?

I had no idea what a “lesion” was or that it could mean “tumour” or “cancer”. I continued working for a year not thinking anything of it and just coping with the daily symptoms.

Everything changed following surgery as I understood that the tumour was life-threatening and what the treatment entailed. I always felt fortunate knowing that it was likely to be curable and I didn’t feel scared as I was determined to do everything to get through. But I was naive about what that would involve.

How did the people around you react?

People at work really supported me throughout the strange symptoms while I continued to work and once I began treatment. They took me out and visited when I was able and kept me sane.

My parents and family were there for me 100%. I moved in with my folks and there were times when they had to do everything for me. I reacted badly to medication and radiotherapy and changed so much with the hormonal effects and tiredness, but they were always positive that I’d return to my old self.  I know it was really difficult for them and my sister to see my anxiety and panic attacks but not once did I see them get upset or short-tempered with me. Legends!

What treatment did you have?

The brain surgery (an endoscopic third ventriculostomy) relieved the pressure on my brain. I was then put on high calorie drinks to increase my weight and strength in prep for six weeks of radiotherapy.  I was also on dexamethasone which caused my longest stay in hospital as I reacted badly to being weaned off the drug following treatment.

For a couple of years afterwards I still had regular tests to determine what hormones had been affected and I had six monthly MRI scans until 2012 to ensure the tumour was completely gone. Physiotherapy helped my walking and counselling helped me cope with the hormonal and emotional impacts of the illness.

How did you feel through treatment?

I felt in limbo after the surgery in March 2007 as I waited for radiotherapy to begin in July. I was determined to increase my weight but felt very apprehensive about the effects of the rays. Unexpectedly those three months also gave me time to sit back, to think, to appreciate the everyday things in life that you don’t notice when rushing about in work (I enjoyed the changing seasons). I felt really close to my parents as they cared for me day to day and I found comfort in creativity, drawing, writing and art.

Anxiety, tiredness, restless legs and other nervous system effects of medication and hormone deficiencies had the biggest impact. I became withdrawn, found talking very difficult, couldn’t tolerate loud noises, music, follow conversations or cope with any confrontations. During the withdrawal of dexamethasone I began to think my brain had gone AWOL as I had panic attacks and couldn’t cope with stimulus at all.

What happened after treatment finished?

It was tough getting my life back on track and returning to work, handling my new anxiety, energy and physical conditions and getting accustomed to being partially sighted. I developed techniques to manage the effects and to help me get used to my new day-to-day reality.

The support of friends and family was uplifting but my condition made it very difficult for me to socialise, and I felt pressure to return to “normal”. I felt a need to push myself, taking a new promotion within weeks of returning to work, which I wasn’t ready to cope with.

Starting a part-time Masters degree gave me something else to focus on and work towards other than just getting better. I was incredibly thankful that the medical profession were able to cure my tumour but also became very aware of my own mortality and that of people around me. I felt a responsibility to make the most of every second which also brings pressure.

If you could give one piece of advice to yourself before your treatment what would it be?

My advice to my pre-treatment self would be to value more the support of friends and family and to accept that you’re not going to be on top form when they see you; it won’t matter to them anyway. Oh, and to ditch the red paisley head scarf!

What excites you about working for Shine?

I’m really excited about joining with Shine to be able to contribute to others’ awareness of the help available through treatment, while recovering, and adjusting to the aftermath of cancer and also how it changes you. I appreciate how having cancer early in life interrupts everything, alters your outlook and future, and I also feel the unfairness of incurable diseases limiting lives that are just beginning. I’m motivated to make sure that others going through this are aware of all the great events and support Shine provides. I’m really looking forward to helping young people feel they’re not alone, that they can face this together, and to help them forget for a while the battles they’re having.

Any big plans for 2017?

2017 marks 10 years since my diagnosis. Although the tumour has left me partially sighted I’m enjoying better eyesight following a recent operation. I’ll also be testing a new drug to improve my hormonal jiggery-pokery. I’m making the most of moving from London to Dorset, where my parents and sister (and new nephew) live, and can’t wait for summer by the sea!

The lowdown on eating well after cancer

“Have you tried wheatgrass? How about kale smoothies?”

There is unlikely to be a cancer patient out there who hasn’t been on the receiving end of diet or nutrition advice – whether they asked for it or not. But what does “eating well” actually mean, and how can we do it? And does being healthy mean going raw or cutting out all the fun stuff (Gwyneth Paltrow, we’re looking at you!)?

Last month, we asked the members of our private Facebook group what questions they had about diet and nutrition and we were thrilled that registered dietician Victoria Francis took on the challenge of responding to them!  In her first blog for us, she’s answered 10 of questions and also given us a few healthy recipes (scroll to the bottom if you just want these).  Take a read and let us know what you think. Please do share the post – and share any yummy recipes you have with us as well!


1. You’re a registered dietitian. Can you tell us the difference between a dietitian and a nutritionist?

The key differences are the qualifications and regulations imposed on the two titles.

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Guest blogger and registered dietitian Victoria Francis

Dietitians are the only nutrition professionals regulated by law and governed by an ethical code. This means that dietitians will always work to the highest standard, using the most up-to-date public health and scientific research on food, health and disease when advising people. Currently, due to a lack of regulation, anyone can practice under the title of nutritionist/nutritional therapist/nutrition advisor/ nutritional coach (etc., etc.!). There are many qualified nutritionists, some of who are also registered dietitians.  By no means am I suggesting you shouldn’t seek advice from a nutritionist – but you should check that they are registered with a professional body such as the UK Voluntary Register for Nutritionists.

Dietitians primarily work in a clinical setting in the NHS or the private sector in a variety of settings. Seeking advice from a Registered Nutritionist or Registered Dietitian is the gold standard and you can be assured that all advice discussed will be based on scientific evidence – not pseudo-science! Below, I’ve outlined the qualifications and registration with governing bodies the different nutrition titles need:

Dietitian
Qualification: BSc Hons. in Dietetics, or a related science degree with a postgraduate diploma or higher degree in Dietetics.
Governing body: Health Care and Professions Council

Registered nutritionist
Qualification: Undergraduate or post-graduate nutrition degree
Governing body: Association for Nutrition

Nutritionist/Nutritional Therapist/Holistic Food Coach
Qualification: None
Governing body: None

2. I’m looking for nutrition advice. How do I know that someone is legitimate and knows what they’re talking about?

To guarantee that the advice you receive is credible and evidence-based check what professional body people are registered with and what up-to-date insurance they have. In order to practice as a dietitian, a person has to be registered with the Health Care and Professions Council. Dietitians can also be found on the Freelance Dietitians website (www.freelancedietitians.org). This website lists all the dietitians registered with the HPC.

When looking for a nutritionist ensure they are registered with the UK Voluntary Register for Nutritionists (regulated by the Association for Nutrition).

3. So, what do you think about “clean eating”? 

Clean eating is facing a huge backlash in the media by health professionals who have a big issue with what it stands for and what it can create. The fundamental problem with clean eating is that it is not evidence-based. Food and health bloggers who promote clean eating tend not have any nutritional qualifications but rather want to share their own experiences. This isn’t science!clean-eating

The essence of “clean eating” is flawed as it suggests there is a single perfect way of eating which is essentially setting people up to fail. There are numerous “rules” such as the removal of whole food groups including dairy and gluten, which can lead to very restricted diets with likely nutritional deficiencies. Unless you have Coeliac disease you will not benefit from removing gluten from your diet. Many “clean eating” advocates advise you to replace sugar with “healthier alternatives” such as coconut sugar or maple syrup. To set the record straight: these are all sugar! The body will handle them all in exactly the same way. They are not a superior alternative, just a very expensive one!

Following a “set of rules”, for some people, can impact on their mental health. If they don’t conform to the rules then they feel that they have failed. If you want to eat healthier, reach your 30g fibre a day, reduce your sugar intake, etc. then go back to the basics. Its not sexy or new but it is realistic and achievable. Try to use fresh ingredients where possible, watch your intake of fat and sugar, and look at your eating habits. Aim for small realistic changes.

4. What are your thoughts on processed and fermented foods – especially processed meats and products like Actimel?

What do you think of when you hear the words “processed food”? Most of us think of unhealthy, high fat, high sugar and salty foods. While this may be true for some processed foods, there are many that provide good nutrition also.

Processed foods are “any food that has been altered from its natural state for either safety reasons (e.g. milk is pasteurised to remove bacteria), convenience or to preserve the availability of nutrients”. So breakfast cereals, cheese, milk, yogurts, bread, and tinned and frozen vegetables can all be called processed foods but do we don’t typically consider them unhealthy.

If we focus on red meat, there has been some recent guidance on how much we should be eating. The Department of Health has advised that people who eat more than 90g (cooked weight) of red and processed meat a day to cut down to 70g per day (or 500g per week). This is equivalent to two or three rashers of bacon, or a little over two slices of roast lamb, beef or pork, with each about the size of half a slice of bread.

Some fermented foods, such as yogurts, are sources of probiotics. The research into the health benefits of friendly bacteria from fermented foods is ongoing but evidence does show a healthy gut flora plays an important role in immunity and may offer protection against infections.

5. If you’re fighting fatigue and looking for an energy boost, what foods would you recommend (aside from sugar and caffeine!)?

Before we look at specific foods we need to first take a look at eating patterns. A slump in energy can be a sign that your blood sugar level has dropped a little. Eating little and often (e.g. three small meals with a couple of healthy snacks in between) can ensure that your energy and blood sugar levels are topped up. Try to eat something every 3-4 hours.

The foods you choose have a big impact on your energy levels and many of us fall for the “quick sugar fix” but when you’re looking for an energy boost you need the right balance of carbohydrates and protein.

When choosing carbohydrates, choose foods with a low Glycaemic Index (GI) such as lentils, oats, nuts, seeds, wholegrain bread, and brown pasta. These foods are broken down slowly by the body and their energy is released over a longer period of time whereas foods with a high GI (think sugar, honey, fizzy drinks, white bread, potatoes) are broken down quickly and the sugar released quickly. Protein is also known to be broken down slowly so adding protein to a carbohydrate snack/meal will ensure a slower release of energy

Good snack ideas include cheese and apple, a handful of nuts and fruit, a slice of wholegrain bread or oatcakes with hummus/nut butters/boiled egg, and Greek yogurt with fruit and sprinkling of seeds such as pumpkin or sunflower.

Also, make sure you stay hydrated! Dehydration is thought to be the cause of one in 10 cases of unexplained tiredness. Alcohol also dehydrates you. Aim for 6-8 glasses of fluid per day.

 6. A lot of people claim that sprouting foods like alfalfa and broccoli are extremely high in nutrients. Is this true?

Sprouting is the process whereby seeds germinate and are eaten either raw or cooked. Bean sprouts tend to be the first that come to mind when we think of sprouting but many foods can be sprouted including barley, wheat, spelt, rye, oats, lentils, peas, and pinto and kidney beans, sesame and sunflower seeds, almonds and broccoli.

These foods are all nutrient rich but are not always superior to their non-sprouted counterpart. Rather than focusing on sprouting seeds, a good starting point is to aim for your five-a-day and to include more plant-based foods in your diet where possible. This can be done by adding nuts and seeds to your salads or adding beans to your soups and stews etc.

7. If you’re looking to boost your iron intake, what foods would you recommend?

Iron is an important mineral, needed to make red blood cells which carry oxygen around the body.  Simple ways to boost your iron levels include:

  • Consuming iron rich foods such as red meat, fish, poultry, beans such as kidney or haricot, eggs and fortified breakfast cereals daily.
  • Adding a handful of nuts or seeds such to your bowl of cereal, your pot of yogurt or salads.
  • Ensuring you have fruit and/or vegetables with every meal as vitamin C helps your body to absorb iron. You could have a small glass of juice with your breakfast, a bowl of fruit salad after your meals or just an extra helping of leafy green vegetable such as kale with your meals.
  • Try adding haricot or kidney beans to your stew or soup to bump up the iron. A great tasty alternative to mashed potato is parsnip and cannellini bean mash.
  • Eating breakfast cereals are fortified with iron (except for muesli and granola).
  • Adding a boiled an egg or two to your breakfast for an iron boost. Or take a boiled egg for a snack later in the day

Some foods can make it harder for your body to absorb the iron in your diet such as tea and coffee (due to tannins), milk and some wholegrains. Try to avoid drinking tea or coffee at least 1 hour either side of your meal.

8. If you’re avoiding sugar, are alternatives like honey a good idea?

In a word, no.

“Sugar” loosely refers to several sweet carbohydrates such as monosaccharides, disaccharides or oligosaccharides. The sugar that you put in your tea or on your cereal is made up of two simple monosaccharide units (glucose and fructose) joined together to form the disaccharide sucrose. Honey similarly contains both glucose and fructose and has similar caloric content to sugar. Honey and maple syrup are often promoted as “natural” or “unprocessed” and therefore healthier or superior. But sugar is a natural product, made from sugar beet and sugar cane. The body does not differentiate between maple syrup, coconut sugar etc. and so all of them still raise blood sugar levels similarly to sugar.

Instead of searching for a “healthier alternative”, a starting point could be reducing the cereal-fruitoverall amount of sugar your currently use. You can do this by gradually reducing the amount of sugar you have in your tea or, if you like honey on your porridge, try adding stewed fruit instead.

9. What are your thoughts on raw food diets?

The principle behind raw food diets is that all foods should be unprocessed, unrefined and not heated to above 44c. The theory is that if the enzymes within foods are preserved, this will aid digestion and offer health benefits to your body. Foods allowed on a raw diet therefore includes whole foods such fresh fruit and vegetables, nuts, seeds, sprouted grains and some pulses and grains. Raw diets are largely vegan, although some advocates do include raw unpasteurized milk, raw meat and raw fish.

So, does the evidence stack up? It is widely agreed that a diet rich in plant-based foods including fruit, vegetables, nuts, seeds, legumes and pulses, with less reliance on meat and fish, can offer protection against some diseases such as cancer and heart disease. BUT the evidence is scarce for choosing uncooked, raw foods only. In fact, we know that cooking increases the bioavailability of some nutrients such as lycopene (highest concentration in cooked tomatoes) and betacarotene (carrots).

Choosing a raw food diet could put you at risk of specific nutritional deficiencies including vitamin B12 (found mainly in animal products), calcium and iron, and protein intakes tend to be low on such a diet.

Coconut oil is often promoted on raw diets, but despite the recent health claims, coconut oil is still 90% saturated fat. Eating uncooked foods or unpasteurized milk/cheese should be avoided if you have a compromised immune function and, from a food safety point of view, eating uncooked foods can put you at risk of food poisoning.

Another fad diet? I think so! Take the sensible principles such as increasing your intake of plant-based foods but have an extra portion of pumpkin seeds sprinkled over your pan-fried salmon salad.

10 Do you have any tips on sneaking in your 5 a day?

Before we discuss how to reach your 5 a day lets remind ourselves what is classed as a portion.

The following class as a portion (80g):

  • 1 medium sized piece of fruit e.g. 1 apple/orange
  • 2 small fruits e.g. 2 plums
  • 80g beans and pulses such as chick peas, kidney beans
  • 80g fresh, frozen or tinned vegetables
  • 30g dried fruit

berries-and-porridgeThe obvious way is to reach your 5-a-day is to choose fruit or vegetables as a snack. As much as I know this, however, I personally like a biscuit with my cuppa…so I need to ensure my meals are packed with portions of fruit or vegetables. Here are a few tips:

  • Add chopped dates, apricots or stewed apples to a bowl of porridge. Add sliced strawberries to your bran flakes or banana to your Weetabix.
  • Make pancakes with added blueberries in the mixture.
  • Have chopped crudités with your sandwich at lunch such as cherry tomatoes (x8) or carrot sticks (1/2 medium carrot)
  • Serve all main meals (where appropriate) with a side salad
  • Add a tin of haricot beans or chickpeas to slow cooker meals
  • Mix mashed potato with a tin of cannellini beans for a Shepherd’s pie topping or mix mashed carrot and swede.
  • Try to have have three different vegetables with your main meal.
  • Bulk out your Bolognese mix with a good couple of handfuls of frozen vegetables (this means the meat goes further, you lower the fat, and you increase the fibre too!)
  • Make your own tomato sauce with fresh or tinned tomatoes, chopped carrots, courgettes, onions and herbs. Once blitzed no one will know!
  • Remember that soup is such a great vehicle for veggies.

If you are struggling for a healthy snack then below is a recipe for a fruit and nut bar that I like to make. The combination of whole grains, fruit, nuts and protein make for a healthy, nutritious and sustaining snack!

Nutritious nut, fruit and oat barbars

Ingredients
100g dates
50g semi-soft apricots (chopped)
50g walnuts (chopped)
1 tbsp sunflower seeds
150g oats
60g ground almonds
100g honey
100g low sugar/salt peanut butter

Method

  1. Heat dates in a saucepan with a few tablespoons water until soft and then mash (you may need to add more water)
  2. Heat honey and peanut butter gently in a pan and then add oats, almonds, apricots, walnuts and seeds.
  3. Add dates and stir well
  4. Spread into greaseproof paper lined baking tray and press down firmly
  5. Bake at 160 for @20 minutes
  6. Remove and leave to cool completely before cutting into squares


Midweek meatloaf

This meatloaf uses turkey mince instead of beef, so it’s a great choice if you are trying to reduce your red meat intake. The basic recipe was inspired by a recipe on the BBC Good Food website but I tweaked it to boost the nutrient content. I use whole grain oats and oatmeal to increase the fibre content and whole grains and more tomato puree (an excellent source of the antioxidant lycopene) than originally suggested.

Ingredients
500g turkey mince
1 large onion
2 garlic cloves
1 tsp Dijon mustard
2 tbsp tomato puree
Dried oregano
75g old fashioned oats
25g oatmeal
1 egg, beaten

Method

Pan fry onion and garlic cloves in rapeseed or olive oil until soft (5 minutes). Then combine with all other ingredients and place into a prepared loaf tin (greased or use greaseproof paper). Cook at 180C (160C fan) for 30 to 40 minutes. Serve with green vegetables and potatoes.

Victoria is a freelance dietitian who splits her time between NHS work, her private practice and bringing up her young family. She firmly believes that when it comes to diet and nutrition there is no “one-size-fits-all” approach. She works with clients to help them achieve their diet and lifestyle goals, using evidence based nutrition advice!

For more information about her services see her website here.  You can follow her on Twitter here or on Instagram here

 

It’s Breast Cancer Awareness Month – meet Emma!

October is Breast Cancer Awareness Month and, having shared the story of one of our Directors last month (for Blood Cancer Awareness Month), we thought we would share the story of Emma, our other founding Director this month. Diagnosed with breast cancer in 2006, Emma experienced the isolation that often comes with a cancer diagnosis and is all the more acute when you’re young. Way back in 2008, Emma started meeting up with other young adults with cancer and the roots of Shine took hold. Today, Emma runs Shine with Ceinwen and is Shine’s Director of Operations and Training. Read on to learn more about Emma and why Shine does what it does!

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Emma (left), with Ceinwen at Shine’s 2016 Great Escape

When were you diagnosed and what with?

I was diagnosed with breast cancer in June 2006. I had two tumours and the cancer had spread to five of my lymph nodes. I also had unconfirmed spread into my breast bone and the lymph nodes in my chest so I’m still not 100% sure what stage my cancer is/was!

How did you find out you had cancer?

Early in 2006 someone drove their car into the back of mine while I was stopped at some traffic lights. I had whiplash and sprained ribs and was having physio. I found a lump in my breast that was next to one of my ribs so the GP thought it was a bleed caused by the accident but said he would refer me to the hospital anyway. When I finally got my letter from the hospital, the soonest they could see me was in 12 weeks time (this was before the two week wait was introduced in the NHS). While waiting for my physio appointment at a private hospital (I had BUPA through work), I noticed a sign for a specialist breast centre so I figured I’d get an appointment there as I had already paid my insurance excess! I was seen the following week and was sure that they were doing all of the tests to get more money from the insurance company!

I was so unconcerned about the follow up appointment that I went to receive the results on my own on the way home from work. The words from my doctor – “I’m really surprised but it is a little cancer” – will always stay in my mind. I remember thinking ”what’s a LITTLE cancer??”

What did you think and feel when you were diagnosed?

Because I had come in alone, the consultant suggested that I call my partner and come back in when he arrived. I was in shock. I can only remember certain phrases like “you’re so young that we’ll throw all of the possible treatment at you” and “normally we aim for five years survival but, with your age, we are going for 20”. I remember thinking that I would still be in my 40s after 20 years and that that wasn’t long enough.

Over the next few days, I went into planning mode to deal with work, friends, family and the huge number of hospital appointments that I suddenly had to fit in. Looking back, I coped by focusing on the practicalities such as finding pyjamas for hospital that buttoned up at the front (surprisingly difficult!).

How did the people around you react?

My partner and family were as shocked as I was. We had no family history of cancer and I hadn’t met anyone who had dealt with cancer at my age before. I really thought that it only happened to older people.

Everyone tried to help with practical arrangements but I avoided a lot of my colleagues and friends as I felt awkward dealing with their reactions. I lost count of the number of times I heard phrases like “but you’re too young for that” (I know!) and “my uncle’s brother’s wife’s sister had that – oh, she died” (thanks, that’s really helpful!).

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Emma during treatment

What treatment did you have?

I started with surgery to remove the original tumour but, when I went into surgery, they found another one. I had a lumpectomy rather that the mastectomy that would have been recommended if they’d known about the second tumour. I decided not to go back for the full mastectomy as my surgeon had got clear margins (it’s amazing how much jargon you learn!).

My oncologist then recommended a CT scan and a PET scan both of which showed up “dodgy bits” in my breastbone and the lymph nodes in my chest. At the time, I didn’t really understand the difference that made to my diagnosis but as the next lot of treatment would have been the same anyway, we went ahead with chemotherapy.

We also discussed the fact that I hadn’t had children and talked about options to preserve my fertility. My partner and I discussed it and decided not to take any of the options as they meant delaying chemo. I started my treatment with injections into my stomach to send me into a chemical menopause.

All together, I had 8 rounds of chemo, given every three weeks (FEC-T) and also started on infusions of Herceptin that went on for a year. I also had six weeks of daily radiotherapy to the remaining breast tissue and into my neck and I also started taking Tamoxifen tablets, (though I later switched to Exemestane). I stayed on the injections and tablets for 7 years in total. I used to say that I would rattle if I was shaken!

How did you feel through treatment?

The surgery wasn’t too bad as I was in a lovely, swanky private hospital with three course meals and a wine list! It was a bit scary having the anaesthetic though – and a bit weird coming round and finding myself halfway through a conversation that I couldn’t remember!

Going straight into menopause was also bit of a shock to the system. Overnight I developed massive hot flushes and sweats and felt like an old person when I tried to get up from the sofa.

The chemotherapy wasn’t as bad as I expected it to be but it did get worse as I went through all eight rounds. By the end of it, I had absolutely zero energy and felt like I’d been hit by a truck. My veins also decided to stop working so I agreed to have an operation to implant a portacath. This meant that the Herceptin could be given straight into a port under the skin in my chest which had a tube leading straight to my heart (sounds scary right but it definitely made life easier!).

My treatment went on for 7 years in total and I still take some tablets to deal with the after-effects of the treatment. After each type of treatment finished, I was worried about the cancer coming back as I felt like I was losing some protection they gave me. I still find the regular scans frightening though. I haven’t found a way to remove that ‘scanxiety’ completely but it is much easier with my Shine family around me.

Throughout treatment I thought that, once I was done with the main treatments, that my life would go back to normal. That never happened and when the hospital visits slowed down and treatments came to an end, I felt as if I had been abandoned to work out what came next. I felt like I was living in a ‘should be’ era – I should be feeling amazing that I’d come this far, I should be able to pick up my life from where it left off…. I am naturally a very positive person and I didn’t initially recognise that the feelings that I was having were of isolation, anxiety and depression.

It took nearly three years for me to admit that I was still struggling and to take steps to get help. It is not an understatement to say that my amazing counsellor, Kathy, changed my life completely. With her, I was finally able to sort through the mess of everything that I thought I ‘should be’ feeling and to talk through the experiences I’d had through treatment and beyond. At first I couldn’t understand how talking about it would help but it enabled me to face the anxieties I had been holding on to and to feel more empowered about my future, whatever that holds.

Tell us about your work with Shine

Throughout treatment, the “you’re too young” comments kept coming and the support groups that I attended were full of people showing me photos of their grandchildren! Eventually, I met the amazing Justine through a random breast cancer chat room. She was just a few years older than me and had also been through treatment for breast cancer. We met for coffee which ended up lasting four hours and I suddenly realised just how isolated I had been.

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Emma and Justine at the first Shine party in 2008

That meeting led us to start Shine (although we didn’t have a name!) and we decided that we should reach out to other younger adults with all types of cancers. In the first year we connected with over 100 people in Dorset and it felt amazing to make sure that other people didn’t feel as isolated as we both had. We had fun too, doing things that suited us (mainly bars and coffees!) rather than the standard cancer support group format. And thus, Shine was born….

Meeting Ceinwen in 2010 was the next brilliant coincidence. Ceinwen had been diagnosed with cancer shortly after having a baby (you can read her story here) and was looking to do something similar to Shine in London. We met for coffee, which again lasted 4 hours (be careful if we ever have coffee together!), and we realised that we had a lot of similar ideas about the lack of support that was available to younger adults diagnosed with cancer. Together we started work on the ‘Small c’ Project, the first research project in the UK to look at the needs of young adults with cancer. We then went on to develop a programme of activities and events that aim to meet those needs.

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Emma and Ceinwen with Shine Trustees Laura and Christopher

We also started setting up Shine Networks in other parts of the UK, giving people the chance to meet others in similar situations much more quickly that we had been able to.

The feedback and stories we heard from the people that Shine supported in the early days quickly made my career (banking – sorry!) seem much less important and certainly less rewarding. I eventually left my career in 2012 to fully focus on Shine. I have never regretted any part of that (despite the massive impact on my bank balance!) and absolutely love my job, even on a Monday morning – and at 2am on a Sunday as it’s not really a 9-5!

Nowadays, we are both still working hard to reach the 30,000 young adults diagnosed with cancer each year in the UK and to develop more programmes to fill the gaps in support that still exist for young people dealing with cancer.

What difference has Shine made to you?

Personally, I now have a huge network of people around me that just “get it”. I can talk to people about things I wouldn’t put on my “normal” friends. I also have people that also get the dark humour and the fact that you’re definitely not being ‘negative’ by talking about your funeral music or not planning too much for the future!

I love to feel like what we do makes a difference to peoples lives, and I still sometimes can’t believe what we have achieved in just a few years (mainly because I’m always thinking about the things that we need to do in the future!). In short, Shine has definitely changed my life for the better!

How do you feel now about your experiences? What‘s been the biggest change you’ve faced?

I’ve just passed my ten-year ‘cancerversary’, but the fear of my cancer returning is still there. Certain things still trigger the trauma of some of my experiences through treatment and I don’t think that will ever go completely. However, I am much more able to deal with the scary bits now and, of course, know amazing people who help and support me.

I don’t feel grateful for having cancer. Instead, I feel grateful that I have been able to channel my experiences into something that helps other people and also brings me personal joy and fun. I try not to stress over the small stuff and I honestly appreciate much more about the wonderful people that surround me.

emma-4

Emma in 2016!

If you could give one piece of advice to yourself before your diagnosis what would it be?

This is hard! I felt invincible before I was diagnosed with cancer and I think most people in their 20s (or 30s or 40s!) feel the same way unless they have personally experienced something really scary. I’m not sure I would have taken my own advice anyway but it would probably be to appreciate the people around you and the things in life that actually matter – and to make sure that you are living the life that you want, not the one that is expected of you.

More information about Shine’s impact and our history, staff and Trustees can be found on our website here. If you’d like to get in touch, please drop us a line at hi@shinecancersupport.org. 

It’s Lymphoma Awareness Month – Meet Ceinwen!

September is Blood Cancer Awareness Month so we thought this was a great time to share the story of one of our founding Directors, Ceinwen.

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Ceinwen (right) with Emma at Shine’s 2016 Great Escape

Diagnosed with Stage 4b diffuse large-b cell lymphoma in 2010, Ceinwen now runs Shine with Emma (look out for her profile soon for #BreastCancerAwarenessMonth) and heads up our fundraising activities, as well as designing our national programmes with Emma, our other Trustees and our amazing volunteers. Having been through cancer, its treatment and its aftermath, Ceinwen’s insight and experience is key to what we do at Shine and helps to ensure that all of our activities meet the needs of young adults with cancer. Read on and please share with others!

When were you diagnosed and what with?

I was diagnosed with Stage 4b diffuse large b-cell lymphoma in February 2010.

How did you find out you had cancer?

At the end of December 2009, I was pregnant. I became really unwell and had my daughter prematurely. The doctors thought that I was experiencing complications from the birth so I don’t think they took things too seriously at first. About three weeks later, I developed such excruciating back pain that I ended up calling an ambulance and going to the hospital. They gave me antibiotics but when I didn’t feel any better the next day, I went back. I then spent three and a half weeks in the hospital seeing all kinds of doctors who were trying to figure out what was wrong with me. Tuberculosis was looking like a good candidate for a while and I remember thinking “that doesn’t sound so bad” but after a chest x-ray they realised I had a large mass in my mediastinum (a part of the body I’d never heard of before!). They also discovered I had “lesions” on my liver – at the time, I also didn’t realise how bad that sounded. Eventually, someone got a haematologist to look at me and he put all the symptoms together. I’d had night sweats, fevers, loss of appetite and unbelievable fatigue – all typical symptoms – but no one had realised I had lymphoma.

What did you think and feel when you were diagnosed?

I had barely heard of lymphoma when I was told I had it. I knew nothing about cancer and was obviously worried I was going to die. I

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Ceinwen & her daughter today

was devastated and worried I wouldn’t get to see my daughter grow up. And then pretty quickly I went numb. I generally managed to hold it together during the day but spent a lot of nights panicking and crying. I was also told that I would have to stay in the hospital for six months receiving chemo and I remember wondering how my husband and I were going to manage work and a baby and cancer all at the same time.

How did the people around you react?

I think they were as shocked as I was by the diagnosis. I had never heard of anyone having cancer and a baby at the same time and neither had my friends or family. I remember thinking “Cancer and pregnancy is a thing?”. For the most part though, they rallied around. I had family and friends come to stay and look after my daughter and help my husband out. I was never short of visitors! If there’s one thing cancer taught me, it is how much I am loved. Whenever I have a bad day now I try to remember that.

What treatment did you have?

I was put on a clinical trial testing a high-dose chemotherapy regimen called R-CODOX-M/IVAC-R. I had a Hickman line and two of the rounds had 15 days of chemo followed by a recovery period, while the other two rounds were 7 days of chemo followed by a recovery period. Part of the treatment is having “IT chemo”. I remember seeing that on my treatment sheet and not knowing what it was. It turns out it is chemo injected into your spine. I was horrified! For me, that was the worst part of the treatment. I had to have it done 8 times and I’d already had a few lumbar punctures and a bone marrow biopsy by then, so by the time I finished treatment I never wanted anyone to go near my spine or back ever again!

How did you feel through treatment?

I know for a lot of people chemo makes them feel terrible, but I was so ill when I started that the treatment made me feel better. I’d been so weak that once the chemo kicked in and started to push back the cancer I felt totally different. I had a period of time where I went days without brushing my teeth or getting out of bed. To be able to get up and take a shower felt like a miracle.

What happened after treatment finished?

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Monthly immunoglobulin infusion done at the hospital

For about a year after treatment, I focused on getting my fitness back. Spending six months in bed is terrible for you and I found it hard to walk for long periods because my feet and back ached. Just as I was getting back into running, I caught meningitis. I ended up back in the hospital for a month and it was then that the doctors discovered that my immune system had really taken a hit as a result of one of the drugs I’d had. My body basically doesn’t produce b-cells properly anymore so I need monthly immunoglobulin replacement therapy to prevent me from getting any more infections. Immunoglobulins are super expensive so I like to think of myself as a million dollar woman.

Tell us about your work with Shine

Shine is my and Emma’s baby! Both of us were diagnosed with cancer as young adults and we both found there was a real lack of support out there. If you aren’t a child or teenager, you get lumped in with elderly patients who may be lovely, but they don’t get what you’re going through. I remember mentioning to some people that I volunteered with how I was missing loads of work because my appointments took all day and they said “Oh, I just pack a lunch and make a day of it”. We had very different perspectives!

I met Emma at the end of 2010 and found out she had started a support group in Dorset called Shine. I’d wanted to do the same thing in London so we decided to work together. Since then, we’ve grown Shine into something bigger than we ever imagined six years ago. Our first workshop in April 2012 had about 20 people at it. Last year, our Shine Connect conference had 100. It’s been amazing to see how many people we’ve been able to reach and support. I always thought that I wouldn’t want anyone else to feel as alone as I did when I was diagnosed. I hope with Shine we’re helping to make that happen.

What difference has Shine made to you?

Apart from loving my job, Shine has also given me friends and support that I didn’t have back in 2010. I still get regular check ups, and aches and pains still freak me out. It’s good to have people I can call up to share my worries with – people who totally get it because they’ve been there. I frequently diagnose myself with other forms of cancer – cancer of the toe, cancer of the eyebrow, etc. etc. – and it’s really good to have friends who understand exactly why I’d be concerned that the bruise on my foot is cancer (and to explain why it’s probably not)

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Ceinwen with some of Shine’s peer supporters at the 2016 Great Escape

How do you feel now about your experiences? What‘s been the biggest change you’ve faced?

I think it can be hard to feel positive about something so awful, particularly something that changes your life so fundamentally. All of the things I thought I would have in terms of family and career changed when I was diagnosed. I was working in international development when I got sick and I remember my doctor saying that the sort of travel I used to do wasn’t an option, at least in the short term.

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Ceinwen working in Kathmandu, Nepal while pregnant – shortly before getting ill.

You can’t ever go back to who you were before, as much as you might like to. Some days, that really sucks. Having said that, I’m in a good place now! I absolutely love all the work we do at Shine and have a lot of fun. I’ve laughed more in the last six years than I did in the six years before that. Having a few life threatening illnesses does give you a different perspective on things!

If you could give one piece of advice to yourself before your diagnosis what would it be?

I remember being really annoyed that I’d managed to get so ill because I thought I was taking care of myself – I was a vegetarian and exercised a lot. Obviously I got sick anyway, so I’d probably tell myself to eat more cake.

You can read more personal profiles from Shine’s community here. Shine also has an private online community that we run via Facebook. To join, send us a request and then send a message to us through our main Facebook page. 

breast cancer

Life – but not as you knew it: Living the dream

In September 2017, a group of intrepid climbers will make their way up Tanzania’s Mount Kilimanjaro while raising money for Shine. One of those making the journey is Rosie Hellawell, a member of Shine’s Dorset Network. Rosie currently blogging her way through cancer treatment (and the alphabet) and we’re delighted she’s written a blog for us about how she’s working to realise her dream of climbing the world’s tallest free-standing mountain once she’s finished treatment.  Take a read, share, and let us know what you think. And if you’d like to donate to Rosie’s trip, please check out her fundraising page here.

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Guest blogger Rosie Hellawell

DREAMS: Transforming Desires to Reality Everyday through Aspiration, Motivation and scary Statistics!

Desires

Since receiving my breast cancer diagnoses in June of this year I wouldn’t say that my long term desires have massively changed. I would still like to complete my degree, find a nice guy, travel the world, buy a house….that kind of thing. Nothing too out of the ordinary. I am hoping that cancer is just a little blip in obtaining those goals and that it is actually teaching me a lot and opening up new experiences that will be useful in the future.

Reality

However, I cannot escape the reality that my mortality has massively been called into question. For the first time I feel first-hand how precious life is and how quickly it can be taken away. I see members of support groups that I am part of, incl

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NED: No Evidence of Disease

uding Shine, being taken too early on an all too regular basis. So, in the spirit of coping with reality, I must now add ‘living for a reasonable amount of time’ to my list of desires. Unfortunately, as we all know there is no cure for cancer but to become a ‘Neddy’ (to have ‘no evidence of disease’) is now also up there with the best of the rest of my desires.

Everyday

There is no getting past it: living with cancer on a daily basis is no walk in the park. But having the support of others in my age range who are dealing with similar situations to me has proven invaluable.

A lot of control is taken away by this hideous disease but I choose to retain what control I do have by taking actions towards my future. This has been anything from getting involved with different support groups, trying new sports, fundraising, blogging and becoming an ambassador for awareness charities. But on a particularly overwhelming day it can mean simply writing a meal plan and a shopping list. I find everything is easier when broken down into smaller chunks. By doing that shopping and cooking that meal and freezing up portions for future rubbish days, I am once again back in the driving seat.

Aspiration

Aspiration is defined as ‘a hope of achieving something’ or finding the inner strength to achieve. As a wise man once said, (well actually it was Dave Pickles in his webinar last week!):

horse

Yes, I have just stolen his quote but it makes perfect sense! This picture speaks a thousand words to me. I refuse to let worries of failing hold me back. If I don’t try, I will never know what I am capable of and the last thing I want to do is look back at all the things that could have been if only I hadn’t let fear get the better of me. I would much rather look back at all the amazing things that I did manage to achieve.

The opportunity to climb Mount Kilimanjaro for Shine Cancer Support has come at the perfect time for me and has given me a focus to get me through my treatment and out beyond the other side. Not only will the trek itself be a huge physical and mental challenge, the fundraising and training will include targets to be met along the way. This will help with my recovery and will give me back some more of that lost sense of purpose and control.fb_img_1472033674460

Motivation

A cancer diagnoses is a pretty big motivation tool to get me off my backside and out of my comfort zone, saying ‘yes’ and taking on all the new and exciting opportunities that come my way. The fact that I can raise money for such an awesome charity at the same time is just the icing on the cake. It means that young people diagnosed with cancer in their 20’s, 30’s and 40’s will also be able to feel the full force of fellowship and shared experiences.

Statistics

Scary statistics do definitely help to motivate me. My current ‘favourite’ is that I have 43% chance of not being here in 5 years’ time. I discovered this at 3am one morning when Googling (never a good idea when experiencing steroid-induced insomnia). While I realise that some stats should be taken with a pinch of salt and that, compared to some people, I should be grateful for this figure, the stats also serve the purpose of reminding me that life is precious and none of us know how long we have left. Life can all too often be too short, so I for one am going to go out there and grab every opportunity that comes my way…. what better way to start than up the very aptly named Shiny ‘Mountain of Light’?!

Rosie is a mature social work student who lives in Bournemouth. She was diagnosed with breast cancer in June 2016 and is currently undergoing treatment.

Rosie regularly blogs about her life with cancer here and her fundraising page for the Kilimanjaro trek next year can be found here.